Watching My Father Gradually Go Away
If you can fill the unforgiving minute
With sixty seconds’ worth of distance run,
Yours is the Earth and everything that’s in it,
And - which is more - you’ll be a Man, my son! —- Kipling
As a person taking care is one aspect , seeing the icon slowly losing power of his own constitution gradually one by one is a very painful experience to witness . Pain and suffering cannot be shared, as it is exclusive for anyone.
There are many times Uma and I asked Appa what he was experiencing so that we could understand and help . He never said anything or shared . I now recollect below the phases gradually unfolding all to an end.
When the PD set in he was 82,He managed not bothering about it till 86 , by keeping himself busy with maths workings , religiously taking good walks through ashoknagar roads.
It was from 86, that he lost control of independently moving about . Walks got restricted to the proximity of corridors only. Even then he never hesitated to walk upto the front of the building to unfurl the National flag on Independence day. As the tremors became severe , it brought in severe hallucinations. Inaddition to Ropark and Syndopas , Raghu wonderfully introduced Somajina a tablet meant for neuro category. With clever dosages PD was contained . Deteriation of mental faculty delayed. Other wonder drugs were Archelion/Megacholin which were contnued till he breathed his last..
Following changes were recollected now of Appas..
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Walking reduced, no exercise
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Appetite reduced
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Joints getting stiff
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Food intake going down
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Not able to sign ( he was signing full as CGSubramaniam), as big in the mind signalling to hand to put the next word
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Irritation of Sound and Light
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Sleeping for extended hours like a baby
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Body’s strength to stand on its own feet going down
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Not being able to take solid food
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Distended bowels
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Not being able to take liquid food through oral feeding ( as all were going to Lungs)
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Nasal tube through Feeding of medicine and food.

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Bed Sores
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Digestive system totally giving way
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Breathing diificulty
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Heart slowly stopping and body getting cold….
( all these over three years …. majority happening in the last three months)
I realise now , that the day his hunger and thirst stopped , that was the time he decided to move into the Galaxy.. We were only forcing him to stay through our care and anxiety by giving him food and medicine so that he had strength for three things 1> Opening and closing of his eyes
2> to respond to the sound 3 > Say a word " yes" or "No" with great effort.
Raghu for many times pulled him out on many occasions from the brink of total collapse . This Sunday (28/12/2010) , it proved otherwise . I had only some satisfaction of having felt him through my handling while giving bath , making him sit at Hall and again putting him back into the bed and changing his positions for bringing him relief to his bed sores. Surpisingly that day for the first time in his life time, Cricket onedayer never appealed to him .
This time despite all being there , on Sunday after taking the night feed at 9.00 PM , he went to sleep with slight breathing difficulty. We werehopeful that he would last till 1st to go through the tube insertion into the stomach. But may be he never wanted that and he decided and quitely escaped to eternity at 10.45 PM .
I narrated the above .. How do we help someone for whom the PD has started ? Is there a better cure ? Is there a prevention ? Deep Brain stimulation can they be the cure ? Why is that there are no medical Innovations ? Or for that matter why there are a very few innovations to make human beings immortal ? Is it because that Human being is destined to live only for 70 years and the rest is a chanced existence ?
The movements of Appa since my childhood are coming back again and again… I see that he is slowly getting in .. I am sure Sethu,Raghu and Rama will also be feeling the same way.
Gowri
